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THE MERCK MANUAL MEDICAL LIBRARY: The Merck Manual of Medical Information--Home Edition
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Capacity to Make Health Care Decisions

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The law recognizes that adults—in most states, people over age 18—have the right to manage their own affairs and conduct business, including the right to make health care decisions. Emancipated minors are people below the age of adulthood (usually 18) who are also considered legally capable. The definition of this group varies by state but generally includes minors who are married or who are in the armed forces or who have obtained a court decree of emancipation.

Legal Incapacity: Legal capacity and all the rights that go with it remain in effect until death, unless a court of law determines that a person can no longer manage personal affairs in his own best interest and court intervention is necessary to protect the person (a status called legal incapacity or incompetency). Health care practitioners, even if they think the person is incapable of making a decision, cannot override the person's expressed wishes unless a court declares the person legally incapacitated. Today, state laws favor the term “incapacity” rather than “incompetency” and define the term as task-specific—that is, every task requires different capabilities to accomplish. For example, a person may be declared legally incapacitated regarding financial affairs, yet still retain legal capacity to make medical decisions or decisions about where to live. A finding of legal incapacity by a court of law takes away all or part of a person's right to make decisions. Legal incapacity normally results in the appointment of a guardian or conservator to make necessary decisions for the person.

Clinical Incapacity: Clinical incapacity to make health care decisions is the medical judgment of a qualified doctor or other health care practitioner who determines a person to be unable to do the following:

  • Understand his or her medical condition, or the significant benefits and risks of proposed treatment and its alternatives
  • Make or communicate appropriate medical decisions

A person in a coma cannot make any decisions, whereas a person with a severe language problem may be able to make decisions but may be unable to communicate them. People with mild dementia may think clearly enough to understand discussions with their doctors and make some medical decisions. Also, clinical incapacity is not necessarily permanent. People who are intoxicated, delirious, comatose, severely depressed, agitated, or otherwise impaired are likely to lack the capacity to make health care decisions but may later regain that capacity. A patient's ability to carry out a decision is also important for doctors to assess. For example, a person with a broken leg may be able to make decisions but be unable to carry them out. Providing the necessary support to carry out a decision becomes an important goal of care.

People with dementia may require an evaluation of their level of cognition, memory, and judgment before their doctors can proceed with medical care. Likewise, a clinical evaluation of the person's ability to conduct major legal and business transactions may be needed before a lawyer or accountant can proceed with transactions. For medical decisions, if doctors find that a person lacks capacity, they turn to someone appointed by the person or to a close relative or friend to act as substitute decision-maker. This process of making health care decisions for people who cannot make decisions for themselves is rarely litigated in court. However, if the patient or other appropriate party objects to a particular medical decision or to the determination of clinical incapacity, the courts may become involved. A doctor cannot go against the person's wishes unless a court declares the person legally incapacitated.

Last full review/revision October 2007 by Charles Sabatino, JD

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